You can’t be sad when Daisy is around, she won’t let you.

I’ve been so focused on state government, I haven’t really focused much on the war in Iraq.

An exhausted parent can’t provide the best care, although occasionally, we have all had to do so.

The process of reforming the mental health system never includes the complaints that families and caregivers have regarding a need for increased access to resources, treatment, education, and financial support. Reform has continued to ignore...

The more love and support your child receives, the richer his or her life becomes, and nurses can certainly add to the circle of love surrounding your child.

Dancing. I couldn’t understand the fascination my brother had for it, but I could respect what it meant to him. How could one imagine and wonder about something so simple? An action most take for...

When it is managed effectively, in-home nursing can become a support for caregivers and families stressed with the care of a medically fragile child.

My children taught me the true meaning of unconditional love.

As I was wheeled into the operating room I pleaded withGod for one more day, one more week, one more month with her.

My faith has strengthen. God has shown me through my son with Down syndrome to not take anything for granted. I’m more grateful.

I know of other mothers who have children with disabilities,and right away they loved them and decided to fight for them.That isn’t my story.

Often people ask, “How can you say you’re blessed to have a son with Down syndrome?” My outlook on life has forever changed. I see my own challenges differently. He’s always showing me that life...

With emotions ranging from fear, grief and anger to happiness and relief, the process of bringing home a child who needs in-home care can be complicated

But in a home where grief is fresh and patience has long worn thin, making it through another day is often heroic in itself.

The partnership between nurses and families is based on mutual trust, and defining the boundaries and rules clearly will help everyone involved, especially your child.

I just saved you from having to find a nice way to say no to the leg dragger.

Think of instinct as an unscientific, unquantifiable tool that can be used along with more concrete evaluations to make a well-rounded decision.

Managing in-home nursing is not always easy. It can be terribly frustrating sometimes, and it can take a while to feel like everything is under control, but success is possible.

Daisy didn’t just change our lives, she changed our destiny.

Parents of medically fragile children find themselves becoming experts in lots of different areas, including laws and regulations, research and treatments, and the various specialists that support the health of their children.

It seems like it has been forever. But i getbthe feeling that forever hasn’t even started yet.

Even though our journey as parents of a medically fragile child began with emotional turmoil, it has since become a purposeful odyssey that brings meaning and depth to our lives. This is the road we...